I WANT TO GET
INVOLVED IN RESEARCH
Getting involved as a patient partner
If you would like to play a more active role in biomedical research, you can get involved as a patient partner. Your experience and perspective as a patient or caregiver are invaluable in helping to guide research projects, improve the quality of studies, and ensure that they better meet the real needs of patients. This involvement can take many forms: participating in research committees, collaborating on study design, reviewing information materials, or helping to disseminate results.
Speaking up for more humane research
By getting involved in research, you bring a unique perspective: that of living with the disease. Your experience helps researchers better understand patients’ priorities, real needs, and concerns. This helps make studies more relevant, research questions more closely aligned with real-life experiences, and results more useful for those affected.
Why participating in research as a patient is important
By participating in a research project, you are directly contributing to advancing medical knowledge and improving future healthcare. Every piece of data, every sample, every piece of feedback counts: it is thanks to patient involvement that researchers can better understand diseases, evaluate new treatments, and tailor care to the real needs of those affected. Your participation not only benefits research, but also other patients—today and in the future. It is a concrete way to advance science while giving meaning to your own health journey.
The essential role of biobanks in research
Biobanks play a fundamental role in advances in health. They enable the collection, storage, and availability of biological samples (such as blood, DNA, or tissue) and associated data (medical, clinical, environmental, etc.) in an ethical and secure environment. Thanks to these resources, researchers can better understand the causes of diseases, identify early markers, develop new treatments, and personalize care. Without the voluntary participation of people who agree to contribute to a biobank, many advances in biomedical research would simply not be possible.
Various ways to get involved
You don’t need to have a scientific background to contribute to research. You can participate in advisory committees, proofread documents intended for the public, collaborate with researchers on projects, or raise awareness about research among other patients. Every form of involvement counts and can be tailored to your preferences and availability.